April is Parkinson Awareness Month
Parkinson Canada is the definitive voice of the Parkinson community in Canada for over 55 years. We are here to help – no matter what. Parkinson Canada is a national charity and an Imagine Canada accredited organization since 2013 that operates almost exclusively thanks to the generosity of donors.
An Introductory Guide
This introductory guide, developed and authored with the McGill University Health Centre Patient Education Office, will help you better understand Parkinson’s disease. It describes the illness, changes in your body over time, treatment and care options, possible health problems, as well as when and where you can find more help. You are encouraged to review this guide with your family. Bring it with you to your appointments with your health care team.
Parkinson’s and COVID-19
Dr. David Grimes
Join us this Wednesday at 1:00pm EST for a Facebook Live with Dr. David Grimes as he discusses the impact of COVID-19 on people with Parkinson’s. Your questions will be answered during this unique opportunity to hear from the lead author of the Canadian Guideline for Parkinson Disease.
Dr. David Grimes is the Head of the Division of Neurology, Professor of Medicine at The Ottawa Hospital – L’Hôpital d’Ottawa and University of Ottawa – L’Université d’Ottawa Brain and Mind Research Institute. He is the Director of the Parkinson’s Disease and Movement Disorder Clinic at the Ottawa Hospital and is recognized as a national expert in movement disorders.
A comprehensive new Canadian Guideline for Parkinson Disease, 2nd Edition, provides practical guidance for physicians, allied health professionals, people with Parkinson’s and families on disease management. CMAJ (Canadian Medical Association Journal www.cmaj.ca) published the new guideline accompanied by an easy-to-reference infographic and podcast.
An interdisciplinary team of experts from across Canada helped develop the second edition including 13 new recommendations, which consolidate new evidence and address gaps.
The guideline includes 97 recommendations divided into five sections for ease of use:
- Communication (including families and caregivers)
- Diagnosis and progression
- Non-motor features
- Palliative care
Plan for Parkinson’s
Parkinson’s is the
in the world
The average wait time to
see a specialist for diagnosis
of Parkinson’s in Canada
is 11 months
and in some regions
the wait is 2+ years
Parkinson Canada is asking for $100 million over five years to develop a Plan for Parkinson’s that addresses the following priority areas:
- Invest $30 million in the Canadian Open Parkinson Network to accelerate research discoveries in the cause, treatment, and ultimately a cure for Parkinson’s
- Increase the skilled Parkinson’s workforce to promote early diagnosis and improve access to specialized multidisciplinary care
- Ensure Parkinson’s treatments and therapies are affordable and available
- Improve access to care partner resources and supports
- Increase access to evidence-based community programs to improve quality of life
- Ensure access to palliative care and end-of-life options
Parkinson Canada together with Brain Canada announce the creation of the Canadian Open Parkinson Network (C-OPN). The $2 million Platform Grant is intended to support the initial development and maintenance of a large-scale research network that is built on the foundation of the established and successful Quebec Parkinson Network (QPN), and involve multiple provinces, in the field of Parkinson’s disease and related disorders. Brain Canada receives financial support from Health Canada through the Canada Brain Research Fund.
“The Canadian Open Parkinson Network is a major initiative that will keep Canada at the leading edge of Parkinson’s disease research. By building a strong, interconnected and collaborative network of researchers, physicians and people living with Parkinson’s, we can work strategically to accelerate advancements in Parkinson’s research and treatment,”Dr. Oury Monchi, Principal Investigator and Director of the C-OPN
With more than 25 people newly diagnosed each day in Canada, the demand for Parkinson Canada services and those of the health care system are increasing dramatically.
Through the new ACT on Time™ program launched in 2019, we want to help hospital and care facility staff to understand Parkinson’s better. We want them to understand what happens to people when they don’t get their medications on time.